I threw an online surprise birthday/transplant party on Facebook while my stem cells were transplanted into my Mom's body...and invited the whole family to it so we could all 'be there' for her. ♡
[Nathan made a guest appearance via my phone during the video chat to say hi to everyone too... as did Spence (pictured above)]
Keep the prayers coming (and thank you for them)!
The doctors/nurses are heavily monitoring her for at least the next 2 hours and then tomorrow she gets the part of her treatment where they encourage/coax the healthy cells to replicate more/faster...(health professional friends, as always, please feel free to correct/elaborate on my explanations)... and they have to suppress her immune system for a bit to make sure her body doesn't naturally try to reject the new cells... then, a week or so later, she goes through another treatment to rebuild her immune system with lots of monitoring and fluid level correction in between/during.
Narration. Sorry about the two random dings somewhere in the middle.
March 16, 2020: Monday – 8:36 a.m.: Thoughts:
I’ve never seen such a beautiful sunrise over superstructure horizon. The view from the 21st floor of the Lyric, overlooking the heart of Philadelphia during the golden hours, takes my breath away. There is a brief moment of magic on the cusp of daybreak before the city's skyline dims when Heaven’s masterpiece melts into a collaboration between the Creator and man’s delusive efforts not to be outshone.
When I look outside, I can see across to the building where my Mom is staying for the procedure and part of her recovery. Her window stands out, 5th trio from the right—the distinct outline of her transplant calendar framed evenly by the middle pane of glass. Sometimes I can even see her silhouette peeking out through the left of the nurses’ schedule (from my perspective, that is). There aren’t any windows above hers—although there is at least one more floor… a helipad appears to float, centered above her room, tethered to steel pillars invisible to the naked eye. I like to watch the helicopters in flight, maneuvering through the sky as they land, and whisper anonymous prayers for everyone inside.
It’s 10:17 a.m., 43 degrees Fahrenheit, and I miss her.
We video chat sometimes—when she remembers to activate the WiFi on her phone; I jotted a reminder on her wall before we left on Friday night when Covid-19 precautions ‘kicked us out’ of the hospital. Dad is low-key driving me crazy, but I love him anyway. He’s just not used to being away from Mom for any extended period of time—they’ve been together over 40 years and I don’t think they’ve ever even been separated this long throughout their entire relationship. It’s sweet, but also sad. He doesn’t seem to know what to do in her absence…and she’s only 3 blocks away.
I’m fairly certain that he’s already tweaked and fixed anything and everything in the mini-suite that needed fixing or tweaking…a squeaky door hinge, wonky shower curtains, a bent mirror shelf, etc…but that’s how it works, isn’t it? When we can’t fix what matters the most, we go around adjusting the things we can so that we don’t feel as helpless as we really are.
People keep telling me I’m brave. They say that what I’m doing for my Mom is a selfless act, when in all reality, it might be the single most selfish thing I’ve ever done. It didn’t take bravery; it took obstinance.
The truth is, I’m just not ready or willing to imagine my life without her in it.
Others have been far more courageous with far less at stake. I’m doing this because I don’t want my children to lose their grandmother, my father to lose his wife, my sisters and I to lose our mother, or for her to lose all of us.
I’m selfish.
I have more memories to collect, more hugs to share, more wisdom to hear, more smiles to see, more laughter to feel, and more adventures to plan with her. My mother plays one of the absolute most important roles in my autobiography—and we’re just about to get to the really good parts—the chapters where perseverance through hellfire and tribulation unfolds into the beginning of “happily ever after”.
I want her to see that the prayers she cried through clenched fists and tear-stained eyes over the years…prayers for my life… weren’t uttered in vain… and for her to be standing next to me when the knot is finally tied in the right place. She’s got more grandchildren to have, more giggles to enjoy, and so many more stories to tell—many of which have yet to be written…including this one.
So no, this isn’t selfless and it doesn’t make me brave—not from where I stand. I look in the mirror and see a little girl who still isn’t ready to let go of her mother’s hand to face a scary world alone…and I am so darn lucky that this is all it takes from me to keep her.
She always confused this band with Hootie and the Blowfish.
I'm not typically one of those people who flamboyantly celebrates "mini-versaries" of things... especially relationships. I'm not the "Happy 8 weeks and 3 days of being a facebook couple!" type [and I'm still not]. But this is my exception.
[This might not be coming out so well because I'm also fighting a migraine at the moment and words are a bit jumbly in my head]
6 months ago--ironically (or algorithmically) also on a Friday the 13th while we were watching a horror film, Nathan 'asked' me to be his girlfriend... again... 20-some years after he didn't even ask the first time, just assumed I was (but I definitely was)... he didn't even technically ask this time either... just kind of put that we were "in a relationship"...so I guess we've been dating this whole time after all. 😛
Long distance isn't inherently easy. But we make it work. 6 months into all of this and he's been with me through more than some couples are faced with even years into their relationship.
I'm writing this from the inside of a hospital room on quite arguably the most isolated floor in the entire hospital (air-lock entrance/exit, scrubbing in, mandatory mask/glove wearing, no eating/drinking, etc) and he has been with me through the whole transplant process.
From the unnerving initial wait to find out if I was a match for my Mom to all of the health evaluations, exams, timelines, he's been there. And patient with me--even staying on video calls with me through the night while I'm here-- just to make sure I'm okay.
I just... I feel so much better with him around...calmer... regardless of if we're falling asleep together watching a movie from 800 miles away, laughing at one of our shows, critiquing each other's cooking methods, making jokes, or whatever other silly shenanigans we get ourselves into... and I have never felt so loved.
I don't have the greatest history of making exceptional choices, but 6 months ago I made the best one ever.
❤ Happy halfi-dating-versary, Charming. You're my person.
[Don't get used to it though... after this it's just the yearly ones. Hahaha]
Narration. (Sorry about the planes in the background towards the middle/end)
Transplant Procedure Update #1: Day 1: [Un-revised Mind-Rambles]
This morning, my parents made the 3-hour(ish) trek to Philadelphia to start the journey toward my Mom's healing/recovery. As I’m writing this, she’s enduring her first round of radiation… and for those of you who know its process, you understand what it means…”enduring”. For this procedure, it’s needed. Before they left (around 2:30-3:00 a.m.), I gave her the biggest but most gentle hug I’ve ever given in my life and reminded her, “don’t forget to cast your cares”. Hopefully, I’ll get to see her on Wednesday when I join her at the hospital (from my understanding, we will be in different places throughout the entire week—so I don’t even know if I’ll get to actually be with her at any point during my part of the transplant) but if not, I know that heartfelt hug will carry us through the days ahead.
To be honest, I felt a bit empowered yesterday—being the only one really able to embrace her since she’s going to be sharing my blood soon enough anyway. I had to forcefully tug my ego down a notch. (just kidding). [Humor has always been my default ‘defense’ mechanism of sorts when I have something serious to say; those of you who know me, or who have been following my quirkily-eccentric life adventures over the years, can probably already identify the pattern in the way that I write.] It’s time to be serious now, though. [I wrote the first part for her birthday, but didn’t get a chance to finish it until today when it sort of took off in its own direction.]
---
What more can I say to honor a woman who already speaks for herself through the selfless way she lives?—the very same woman who had been cultivating within me the meaning of sacrifice since the day her piercing gaze locked onto the blue of my father's eyes and she proclaimed that if it ever came down to the wire and a choice needed to be made between her or me during childbirth, she would choose me in a heartbeat and he must too. We were both nearly lost in the process of my delivery; I firmly believe that my parents' unwavering faith and the inconceivable strength of my mother's love saved our lives that day.
As an infant, there were times when she wasn’t around as often as I’d have liked. I have traces of memories from the early years on Liberty Street [don’t worry, it’s not the answer to any of my security questions…but it might be my sister’s!]—missing the warmth of her voice when she left to work nights to help make ends meet for our family.
One of the biggest sacrifices a parent can make is to have to spend time away from their child(ren) in order to offer them their best chance at life. I can’t even imagine the number of times she laced up her shoes and kissed me goodnight with tears in her eyes before walking through the door to head off to the Manor to clock in. Or how many soiled bed sheets she changed while watching the clock and praying time would go by faster so she could get off her feet and wrap her arms around her husband and children instead of an IV pole that needed to be wheeled down the hall to room 13. She must’ve been worn out by the time she returned through the doorway to the apartment… top floor, I believe. My sisters would know; they were older. [It was the ground floor; I stand corrected.]
Through her, I learned what sacrifice means—the way she never spent a cent on herself when it was needed for her children. The times we’ve all fallen ill—including/especially her—and she kept going… steadying herself, as frail as she was, against the counter top just to make soup for us or measure out our antibiotics. She was always there with a warm cup of tea, a splash of milk and two sugars—she still is. “Nonnie tea,” Aria calls it.
And for as much as she talks and opinionates (she’s Slovak, it’s expected), she also listens. I honestly don’t know how I’d have gotten through the past year had it not been for her shoulder to lean on when the rest of my life felt like it was crumbling right from under me.
Don’t get me wrong though… we didn’t always get along so well.
One time during high school when I was sitting on my bed (it was arranged in the room differently than it is now—parallel to the door instead of perpendicular, against the wall) and we were having a discussion—I don’t quite remember now if she went to grab something from me, or what the context was… but she ended up accidentally leaning forward too far too quickly and smacking her face on the doorknob. She had a bruised eye for quite a few weeks from that. I remember going to church that month and feeling bad when my Dad was getting the side-eye from some of the other congregation members—as if he were the one responsible for it when really it was indirectly my fault. My Dad has put up with a lot over the years… he’s a champ too. The angriest I’ve ever seen him towards my Mom resulted in him setting a remote controller down on the table slightly louder than usual. That’s it. He has always set a fine example of unconditional love and respect in his relationship with my Mom. Her being sick has been very hard on him too… maybe even especially him in ways… but I’m digressing—as I usually do when jotting my thoughts down in a candid series… you can see the way the gears twist and concepts connect from one to the other to create the big picture as a whole… fragments coming together.
Speaking of the big picture… I haven’t even started packing yet. Am I scared? Parts of me are… like my stomach that finds itself in tangles thinking about what she must be going through right now. How humbling (for a delicate choice of verbiage) it must be to have to sit vulnerably and uncomfortably-positioned in a cold room with cold air in a cold chair surrounded by unfamiliar machinery—left with nothing except for maybe a 1-ply dollhouse-ratio napkin to cover the essentials and unbridled thoughts bouncing around in a frenzy… flesh invaded by dangerous particles making a war zone out of you. “Don’t move.” Stillness in body, synapses transmitting a billion miles a minute.
My mother’s tenacity is contagious. I learned the true meaning of strength the night we almost lost my older sister, Tristina, when a tumor inside of her burst. My parents sped to Lebanon, PA in the middle of the night as she was rushed in for emergency surgery. This isn’t the first time mom’s had to fight it… cancer… the first time was for her child. She’ll win again. We all will. There has to be a reason for it all. And I’m going to keep searching until I find out what it is.
She doesn’t expect this to be easy…the procedure…but there isn’t a bone in her body that has ever been spoiled with the overuse of the definition of that word. “Easy.” She’s tough.
So, what more can I say to honor a woman who already speaks for herself through the selfless way she lives?—the very same woman who had been cultivating within me the meaning of sacrifice since the day her piercing gaze locked onto the blue of my father's eyes and she proclaimed that if it ever came down to the wire and a choice needed to be made between her or me, she would choose me in a heartbeat and he must too... this time, years later, the decision is non-negotiable... "Both."
We’ll get through this the same way we’ve conquered all of the other trials in the history of our family… unwavering faith [yours too] and the inconceivable strength of a mother's love.